|
Dealing
Death
A Pro-Life Nurse Looks at Dangerous
Developments in Organ Procurement
by Deborah Sturm, R.N.
It’s worrisome when you stop thinking of the person who is dying
as a patient but rather as a set of organs, and start thinking more about what’s
best for the patient in the next room waiting for the organs.—Gail
A. Van Norman, M.D., anesthesiologist [1]
Since I first started in medical ethics and serving on hospital ethics
committees, I have seen the discussions devolve from “what is right?”
to “what is legal?” to “can we tweak the old rules to fit
this particular situation?”—Nancy Valko, R.N., Catholic bioethicist
[2]
Although presumed consent is an extremely effective way to increase the
supply of organs available for transplant, it may not be an easy sell politically.
Some will object to the idea of “presuming” anything when it comes
to such a sensitive matter.—Cass Sunstein and Richard Thaler [3]
Several years ago, when I was working at a hospital in the Cleveland, Ohio,
area, employees were asked to attend a seminar sponsored by a regional organ
donation center. One of the presenters talked about how organ donation was consistent
with many religious worldviews. Christians are often encouraged to do so, citing
the New Testament scriptural verse, “Greater love has no man than this,
that a man lay down his life for his friends” (Jn. 15:13). Catholic newspapers
and church bulletins have been noted for their general support of organ donation,
appealing to the heroic level of altruism and charity of such an act. The Catechism
of the Catholic Church states: “Organ donation after death is a noble
and meritorious act and is to be encouraged” (no. 2296).
While working at the aforementioned hospital, my unit manager approached me
with a document that I was to read and sign, explaining the facility’s
policy regarding organ procurement. (My signature on the document, by the way,
was to confirm that I had read and understood the policy, not that
I agreed with it.) The document mentioned notifying the organ donation center
thirty minutes prior to the death of the patient. Curiously, I asked my manager
how anyone knew a patient would be dead in thirty minutes. The policy suggested
to me that deaths were scheduled. She looked at me like a deer in headlights.
Perhaps my question was a bit naïve. At that time, I had not explored
the issue of organ donation to any great depth. I recently told this story to
a Catholic bioethicist who suggested that the document was merely instructing
the medical staff to notify the organ donation center thirty minutes before
removing a “brain dead” patient from life support. And this may
very well have been the case. But how? “Brain death,” as defined
by the Uniform Determination of Death Act (UDDA) of 1981, is “irreversible
cessation of all functions of the entire brain, including the brain stem.”[4]“Brain
death” as defined by the UDDA is the basis for the “dead donor rule.”
I was already aware of the concept of “brain death” and its connection
to the legal definition of death. My curious questioning of my manager, I believe,
was motivated by an intuitive “red flag.” So legally, then, the
hospital policy may not have been referring to removing someone from life support
who is “brain dead.”
Controversy Regarding “Brain Death”
The issue of “brain death” has been a source of controversy and
conflict in Catholic circles for several years. Some Catholic physicians, bioethicists,
and scientists believe that “brain death,” however determined, is
not justification for removal of organs from persons. Others see no problem
with it, as long as the tests to determine “brain death” are reliable.[5]
Furthermore, support for a concept of “brain death” is still strong
inside the walls of the Vatican.[6]
Pope John Paul II stated in 2000 that “the criterion adopted in more recent
times for ascertaining the fact of death—namely the complete
and irreversible cessation of all brain activity—if rigorously
applied, does not seem to conflict with the essential elements of a sound anthropology.”[7]
John Shea, M.D., retired Catholic physician and bioethicist, referred to this
statement as “only a superficially apparent endorsement.”[8]
Because of continued controversy, John Paul II re-opened the debate five years
later regarding “brain death,” and Pope Benedict XVI has followed
suit in reviving the debate.[9]
Currently, there is no consensus on diagnostic criteria for brain death.[10]
In other words, a person diagnosed as “brain dead,” and thus meeting
a legal definition of death, at one healthcare facility, could be considered
alive at another facility.
Death . . . and Coming Back to Life
Skepticism about “brain death” is certainly understandable, given
the documented cases of persons actually coming back to life after being diagnosed
as brain dead. Consider the November 2007 case of Zack Dunlap, a 21-year-old
man who was involved in an ATV accident. He was declared “brain dead”
36 hours after his accident. A brain scan apparently showed a complete absence
of blood flow to his brain. After receiving knowledge of this finding, and knowing
that Zack had signed an organ donor card, his parents agreed to donate his organs.[11]
However, Zack began showing signs of life, and physicians who were at first
skeptical about any chance of recovery cancelled the organ donation and eventually
transferred him to a rehabilitation facility. Four months later, he had a complete
recovery and was planning to return to work.[12]
In May 2008, Val Thomas, 59, suffered two heart attacks and had no brain waves
for more than 17 hours. She was placed on a ventilator, as she was being considered
for organ donation. At one point, rigor mortis had set in—a sure sign
of death. However, while her family was saying their goodbyes, she woke up and
started talking. Thomas was transferred to the Cleveland Clinic for an evaluation,
but physicians there could find nothing wrong with her.[13]
So when is a person actually dead? Perhaps a better question is, “When
does the soul leave the body?” Are we to believe that when a person is
diagnosed as “brain dead,” yet they have other signs of life such
as a heartbeat and a blood pressure, that they are dead? And when a “brain
dead” woman is able to nourish her unborn child and bring him to full
term to be delivered, is she to be considered, perhaps, soulless?
As doctors, scientists, and ethicists explore these questions, one thing remains
certain: A person’s death is not to be hastened for any reason, not even
to benefit the life of another. Yet it seems, unfortunately, that this is occurring
more frequently in our country and around the world, owing to an increasingly
dominant secular ethics in which the ends justify the means. Furthermore, many
secular ethicists believe that morality must change as technology evolves.
Another Highly Questionable Means of Organ Procurement
In the summer of 2007, a California woman, Rosa Navarro, filed a complaint
in a county superior court against an organ transplant doctor and a hospital
because she believed that she was deceived about her disabled son’s care
and that he was murdered for the sole purpose of harvesting his organs.[14]
Navarro’s son Ruben had a rare disease, Adrenoleukodystrophy, that affects
the brain and the adrenal glands, causing neurological and muscular problems
that worsen with time.[15]
The disease left Ruben confined to a wheelchair. Court papers allege that he
developed a medical problem, so he was transferred to Sierra Vista Medical Center
for evaluation and was admitted. He was eventually placed on a respirator.[16]
Ruben was assigned to the care of Dr. Hootan Roozrokh, who Mrs. Navarro believed
was Ruben’s “treating doctor.” However, according to the complaint
filed in court, Roozrokh was actually working for a California organ-harvesting
company.[17]
The court complaint said that Roozrokh informed Mrs. Navarro that nothing could
be done for her son and that he was going to die. She was also falsely informed
that her son had to be removed from the respirator after five days. Believing
Ruben had no chance of survival, Mrs. Navarro agreed to donate his organs. She
did not, however, consent to her son being removed from the respirator.[18]
The court complaint said that Ruben was taken into surgery, where he was removed
from the respirator. However, he continued to breathe. At the direction of Roozrokh,
Ruben was given a lethal dose of morphine and Ativan. (Morphine, if given in
large doses, can depress respiration to the point of complete absence of breathing.
This, in turn, would eventually cause the heart to stop beating.) But Ruben
continued to breathe, so he was given several more doses of morphine. The surgeons
finally gave up and wheeled him away without putting him back on a respirator.
Ruben died nine hours later.[19]
Dr. John Shea commented, “If the allegation [in the court complaint]
is true, that [the physicians] gave lethal doses of morphine three times, I
can’t see how that can be interpreted in any other way than deliberate
homicide.”[20]
This case leads to some important questions: If three lethal doses of morphine
were not enough to kill Reuben Navarro immediately, and instead he died nine
hours later, how hopeless was his condition? Is it possible that he was somewhat
conscious of what was happening and was fighting for his life?
Non-Heartbeating Organ Donation (Donation after Cardiac Death)
Ruben Navarro was the victim of the abuse of another means of organ procurement
from potential donors known as “non-heartbeating organ donation”
(NHBD), also known as “donation after cardiac death” (DCD). It is
also referred to as the “Pittsburgh protocol,” as it was developed
by the University of Pittsburgh. DCD has been the subject of intense scientific
and ethical debate, yet it has been flying quietly beneath the public radar.
This method is being implemented more frequently in response to a gap between
the supply and demand for organs. Simply put, there are not enough “brain
dead” potential donors. Keep in mind as well that organ procurement is
a lucrative, billion-dollar industry. DCD is essentially redefining death.
The practice of DCD involves removing a patient—one who is typically
not “brain dead,” perhaps in some instances not brain-injured in
any way—from life support and foregoing any attempts to resuscitate them.
The surgical team waits for the patient to stop breathing, followed by cessation
of his or her heartbeat. When the heart stops beating, the surgeons monitor
the potential donor for “autoresuscitation”—sometimes referred
to as the “Lazarus phenomenon”—synonymous to “coming
back to life.” If the heart does not re-start within two minutes—although
some facilities wait only 75 seconds—the surgical team begins organ procurement.
The advantage to the organ recipient of such short waiting times is receiving
vital organs that have been subjected to a minimal amount of ischemia,
or lack of blood flow, thus minimizing damage to the organ and maintaining its
viability as much as possible.[21]
Interestingly, one of the impetuses for the development of DCD, in addition
to the gap between supply and demand of organs, is the “desire from patients
and families to donate organs from unsalvageable patients not meeting
formal brain death criteria.”[22] In other words, the patients are deemed
“hopeless,” a subjective judgment that opens up a Pandora’s
box. Comatose and “vegetative” patients, because their conditions
are often deemed irreversible, are most at risk for being targeted for DCD.
Medical Criticism of “Donation after Cardiac Death”
In the summer of 2008, the Journal of Intensive Care Medicine published
an article, which I cited above, issuing a strong criticism of DCD. Their findings
have received little attention in the mainstream media. The researchers unequivocally
claim that there is little evidence that DCD meets the “dead donor rule.”
They say that the two-minute waiting period after cessation of the heartbeat
is “arbitrary” and too short. “Autoresuscitation,” they
write, “has been documented in the medical literature after more than
10 minutes of circulatory arrest and discontinuation of resuscitation in humans.”[23]
They also write, “The medications and/or interventions for the sole purpose
of maintaining organ viability can have unintended consequences on the timing
and quality of end-of-life care offered to organ donors.”[24]
For one thing, removing a patient from a respirator causes a period of oxygen
deprivation. If the organ procurement procedure fails, is it not possible that
unnecessary damage could be done to that patient, perhaps even to the brain?
A Catholic Ethical Perspective
John Shea, M.D., has acknowledged and written about many problems he sees with
both “brain death” criteria and DCD. He expresses concern about
how many bioethicists and the healthcare industry ignore or deny the possibility
that the potential organ donor many be alive. Shea believes, as does Professor
Joseph Seifert from the International Academy of Philosophy in Lichenstein,
that “even if a small, reasonable doubt exists that our acts kill a living
human person, we must abstain from them.”[25]
Thoughts from My Personal Experience
It seems as though the medical community involved in organ procurement has
lost sight of some very important facts about the unresponsiveness
of patients slated for organ procurement. As nurses, we have
traditionally been taught to regard the comatose or otherwise
unresponsive patient as though they can hear us. Furthermore,
it is generally accepted that hearing is the last thing to
go. I have personally experienced simultaneous awareness and
paralysis while awaiting surgery—an experience that
was horrifying, particularly because I was struggling to breathe.
To remove a person from a respirator for organ procurement
when it is possible that they will be aware of what is happening,
I believe, is unthinkable. Could they perhaps have been denied
the information of what they could expect with the donation
of their organs? Would this not be a lack of informed
consent, something that Americans expect from healthcare providers?
Could an Even More Dangerous Trend Be on the Horizon?
In a recent interview with Catholic bioethicist Nancy Valko, R.N., she stated,
“Evil is a ravenous, expansive creature. Once you decide to tolerate a
little bit of evil . . . it expands of its own accord. It knows no limits.”
The Obama administration appointed “Regulation Czar” Cass Sunstein,
who coauthored a book entitled Nudge: Improving Health, Wealth, and Happiness.
In it, he discusses changing current laws that require “explicit consent”
from potential organ donors to “presumed consent.” He argues that
the reason more people do not donate their organs is because they are required
to choose donation.[26]
He supports a law that will automatically sign Americans up as potential organ
donors unless they actively opt out. The Eagle Forum states that this reveals
Sunstein’s philosophy “that the government owns your organs and
you have to request permission for them not to be taken from you after you die.”[27]
If the government owns your organs, it owns you. With the danger of government-run
healthcare on the horizon, one’s humanity—one’s personhood—will
become increasingly eclipsed by the healthcare industry. Shea writes that even
“brain death” can be used for purely utilitarian reasons for organ
procurement. However, and again, DCD is implemented to target those who don’t
meet the “dead donor rule.”
What Can Catholics Do?
Dr. Shea reminds us that the general public has not been
properly informed about what really happens when organs are
transplanted.[28]
Catholic healthcare providers and bioethicists should educate
themselves—as well as their patients and students, respectively—thoroughly
on these issues, particularly “donation after cardiac
death.” A thorough reading of Rady’s, Verheijde’s,
and McGregor’s critical analysis in the Journal
of Intensive Care Medicine is a good place to start.
The website physiciansforlife.org, also has several links
to articles explaining organ donation. As Bishop Fabian Bruskewitz
once said, “No respectable, learned, and accepted Catholic
moral theologian has said that the words of Jesus regarding
laying down one’s life for one’s friend (John
15:13) is a command or even a license for suicidal consent
for the benefit of another’s continuation of earthly
life.”[29]
[1] Quoted in “New
Trend in Organ Donation Raises Questions: As Alternative Approach
Becomes More Frequent, Doctors Worry That It Puts Donors at
Risk,” http://www.physiciansforlife.org/content/view/1337/33.
[2]
Personal email from Nancy Valko, R.N., October 27, 2009.
[3]
Quoted in Aaron Klein, “Sunstein: Take organs from ‘helpless
patients,’” http://www.wnd.com/?pageId=112757.
[4]
National Conference of Commissioners on Uniform State Laws.
(1981). Available at: http://www.docstoc.com/docs/9932726/UNIFORM
-DETERMINATION-OF-DEATH-ACT.
[5]
Hilary White, “‘Brain Death’ is Life, Not
Death: Neurologists, Philosophers, Neonatologists, Jurists,
and Bioethics Unanimous at Conference,” LifeSiteNews,
February 26, 2009, http://www.lifesitenews.com/ldn/2009/feb/09022604.html.
[6]
Ibid.
[7]
Qtd. in John B. Shea, M.D., “Organ Donation: The Inconvenient
Truth,” September 2007, Catholic Insight, http://catholicinsight.com/online
/bioethics/article_747.shtml.
[8]
Ibid.
[9]
Ibid.
[10]
Ibid.
[11]
Nancy Valko, “Was Zack Dunlap’s Recovery a Miracle?”
Voices Online Edition, Vol. XXIII, No. 2, Pentecost
2008, http://www.wf-f.org/08-2-Valko.html.
[12]
Ibid.
[13]
“Woman Wakes After Heart Stopped, Rigor Mortis Set In,”
Fox News, May 23, 2008, http://www.foxnews.com/story/0,2933,357463,00.html.
[14]
Elizabeth O’Brien, “Mother Alleges Doctor Murdered
Her Handicapped Son to Harvest His Organs,” LifeSiteNews,
July 6, 2007, http://www.lifesitenews.com/2007/jul07070603.html.
[15]
] For a more complete description of this disease, see http://www.ninds.nih.gov/disorders/adrenoleukodystrophy/
adrenoleukodystrophy.htm.
[16]
O’Brien.
[17]
Ibid.
[18]
Ibid.
[19]
Ibid.
[20]
Quoted in O’Brien.
[21]
Mohamed Y. Rady, Joseph L. Verheijde, and Joan McGregor, “Organ
Procurement After Cardiocirculatory Death: A Critical Analysis,”
Journal of Intensive Care Medicine, Vol. 23, No.
5, p. 304. Available online at: http://jic.sagepub.com/cgi/content/abstract/23/5/303.
[22]
Ibid. p. 304, emphasis added.
[23]
Rady, Verheijde, and McGregor, p. 305.
[24]
Ibid, p. 303.
[25]
Quoted in Shea, “Organ Donation: The Inconvenient Truth.”
[26]
] “Cass Sunstein: Facts & Talking Points,”
Eagle Forum, http://eagleforum.org/pdf/2009/Sunstein.TalkingPoints.pdf.
[27]
Ibid.
[28]
John B.Shea, M.D., “Organ Donation: The Inconvenient
Truth,” Catholic Insight, September 2007, available
from http://catholicinsight.com/online/bioethics/article_747.shtml.
[29]
Quoted in John B. Shea.
Deborah Sturm is a registered nurse and serves as the
secretary of the National
Association of Pro-Life Nurses. She resides in Steubenville,
Ohio, with her husband, Michael.
Back
to Lay Witness
|
|